Cancer

Vacation

A beautiful orange and pink hibiscus flower.

What is a vacation anyway? I don’t think I’ve ever had a real one. I’ve traveled to see family and had a great time, but a vacation? I guess I deserve one, or that’s what they keep telling me!

So, we went to Hawaii! Maui to be exact, and we stayed with our friends in their spare room. I’m so grateful to have been able to do this trip! After this long year of cancer treatments it felt like a true luxury to be able to decompress in such a beautiful place!

We left Los Angeles Monday November 6th, and arrived in Maui late in the evening. Got a rental car and drove to our friends house and was greeted with fancy glasses with star fruit and umbrellas! Our friends are the best!

Of course first order of business the next day was to find the best local place to get coffee! Wailuku coffee Shop was it! For most of our journey actually… Not only did they have good coffee, but they also had excellent breakfasts, biscuit sandwiches, and bagels. Yum!

That night we went to dinner at Cafe O’Lei at the Maui Tropical Plantation. I just had to have the Macadamia nut crusted Mahi Mahi. Wouldn’t you?

On Thursday we went to Kula Botanical Gardens. So many beautiful flowers and birdsong and bees buzzing!

On Friday we went to get some of the best fish tacos at South Maui Fish Co. and then we walked to Kalama Park to watch the sunset and take pictures and fly some drones over the ocean!

At Kalama Park after fish tacos, Kate takes a selfie with the beautiful Maui sunset behind her. Wearing teal star earring, sunglasses, a purple bracelet, and a black shirt.

Saturday we drove to Paia and had flatbread at the Flatbread Company. I’m pretty sure I saw a cat living in the rafters! After dinner, we wandered around this little town and treated ourselves to gelato at the Paia Gelato.

Sunday afternoon we went to Kepaniwai Park and walked to the ʻĪao Valley State Monument… SO many stairs! but it was worth it!

That night we had Dinner at Tiffany’s (not to be confused with Breakfast at Tiffany’s), and I had my first (and last) MaiTai of the trip. Mai Tai’s are VERY sweet, although this one was tasty too! 🍹😆

After helping our friends move some stuff into their new place on Monday, we had Tuesday to ourselves and went to breakfast at SixtyTwo MarcKet where they have the most delicious shrimp cake eggs benedict. Then we drove to Ho-Okipa Beach and wandered around in the wind and found a place to see TURTLES!

Wednesday was Whale Watching day. After a lovely lunch at Tante Maalaea Harbor Restaurant & Bar, we headed next door to the Pacific Whale Foundation, who does amazing work protecting the ocean and it’s inhabitants. Our ecotour was super informative and windy! We didn’t actually get to see any whales (no refund, but we were offered another tour for free!). Being on the ocean in a boat, made for a lovely afternoon, just the same.

Looking to the west off of the deck of an ecotour Pacific Whale Foundation boat. Rope hanging from the railing. Blue partly cloudy skies with the sun shimmering on the water.

Our last full day in Maui was spent revisiting our favorite coffee shop and looking at native plants at the Maui Nui Botanical Gardens. Then we also returned to the Cafe O’Lei at the Maui Tropical Plantation.

The courtyard and pond at Cafe O’Lei. You can’t see the ducks, but they were there.

Such a lovely relaxing trip! I think I had forgotten how to relax and though I never fully remembered, I did get some nice rest and experienced a lot of great beauty and chill Hawaiian vibes!

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Zejula

August has been the month from hell… Not only are temperatures around the globe breaking records, but my hot flashes are setting some new ones and so are my moods… 

Zejula is my cancer maintenance medication. Its other fancy name is Niraparib Tosylate. I started taking it and then my cancer team took me off of it for a week or so because my blood work wasn’t quite right, but after restarting it, my body seemed to be adjusting to it quite well. The side effects are manageable. This drug is a parp inhibitor, which is a new kind of cancer drug that targets my particular cancer cells. 

So, I go to refill my prescription on the specialty pharmacy website and get to the checkout area and my copay is ridiculous (like there’s nobody can afford that kind of ridiculous), so I pause and call the pharmacy and they have me call my insurance and they tell me they don’t cover that medicine, even though they had covered it in July. So, I call the doctors office not knowing quite what to do. 

Two weeks of phone calls and paperwork, and I still don’t know exactly what went wrong with my insurance… Was it because the manufacturer stopped making capsules and replaced them with tablets? Was it because my oncologist prescribed the first round and my PA prescribed the second? Was it because the pharmacy was trying to mail it from out of state (they do have an in state location)? Was it because the exact right form wasn’t submitted to the insurance company? I may never know… 

Our health care system is broken (blog post for another time), but I’ve been super lucky this year with how much of my care was covered… But getting this drug, this life-saving, hopefully curative drug, has just been maddening. Not to mention stressful. Aren’t you supposed to keep cancer patients from being stressed out? 

Anyway, I ran out of pills in the meantime and my treatment was interrupted for about a week. My oncologist didn’t seem too worried about it, so I’m trying not to worry… Wish me luck with that.

The good news is that the two weeks of phone calls and paperwork paid off and my insurance is now covering part of the drug. My copay is still ridiculous, but I also applied for a copay assistance program that the manufacturer has in place, because they know how expensive it is. So, I’m covered… For now… 

And I finally received a bottle of pills on Tuesday and for that I am very grateful. 

Fight for what you need! 

Kate, with a very serious expression, holds a UPS pharmaceutical delivery box with the word CRITICAL on it.
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Ovarian Cancer Awareness Month

September is Ovarian Cancer Awareness Month.

I want to make some noise about this cancer, that is too often diagnosed late. Please, help me spread the word!

Here are some places that are doing really good work:

Read my blog post about ovarian cancer symptoms and what to watch out for.

I will walk 60 miles in 30 days to help raise money and awareness for Ovarian Cancer Research Alliance.

I have teal heart earrings on etsy available. And for the month of September I will include a teal cancer awareness ribbon pin and a $5 donation to Ovarian Cancer Research.

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