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Chemotherapy

January 30, 2023 ~ Day 1

The shrinkage has begun! And I’m all hopped up on steroids at the moment (8:00PM 1/30/23)… they give you a huge cocktail of anti-nausea, antihistamines, and steroids, before they do the chemo drugs, to help prevent side effects and to mostly prevent side effects in the sessions. My appt. Was at 10:00. We arrived at 9:30 and got right in there. Got home a little before 5:30. It was a very long day.

We had so much stuff we looked like the over-prepared parents on the first day of school. We had a cooler, a shopping bag brimming with snacks, a blanket, a neck pillow, a magical staff, 3 iPads, 2 iPhones, and a laptop…

A possible side-effect of one of the chemo drugs that I am being infused with is neuropathy. I could possibly lose some control over my fine motor skills. As a pianist, this is super scary! Teaching piano would be a whole lot harder if I couldn’t feel my fingers, so we are doing everything we can to prevent that from happening. In our over-preparedness, we have a cooler filled with dry ice and small gel packs that fit into therapy mittens and slippers. Basically, we are icing my hands and feet to reduce the blood flow during the treatment, so that we can potentially reduce the possibility of nerve damage. 

I put these penguin-looking ice-cold flippers on my hands and feet, requiring the boyfriend to basically be my handmaid for most of the entire 8 hour process. He is being so supportive but he did have to wait on me hand and foot. I felt like queen (at least a little) especially with my MAGICAL Staff!

Side Note: If you ever find yourself trying to sneak a magical staff into a medical facility here are some tips: 1) it is ideal if the staff can break into two parts 2) poster tubes make fairly inconspicuous carrying cases.

Christian is pretty heavy into this AI Art thing. There is a process where you can erase part of the picture and have the AI fill-in what is missing. So of course he turned me into the chemo Queen! He loves how this whole AI Art thing lets him blend reality and fantasy, the chair becomes a throne, the staff becomes extra magic… and I am powerful enough to beat this thing!

More chemo journal to come…

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Off With Her Hair!

Kate’s Big Hair Cut.

Feeling any sort of power over the cancer diagnosis has been elusive, but I have achieved a victory with chopping off all of my hair! Taking control of this tiny aspect of this process makes me feel warrior-like and like I’m calling at least some of the shots. 

Christian has been going to George for his hair cuts since he was a boy, and George has become dear to me as well. So, it completely made sense for us to go to him for my drastic new do! 

We are sending my hair to Caring and Comfort a wig maker who specializes in helping women with hair loss and they will make my hair into a wig for me! 

If you are interesting in helping me on my cancer journey (Kate’s Quest). There are many ways to fight this battle! Of course, money is an extremely useful thing…I have decent insurance and it seems like it’s covering most of this, but with ancillary expenses that are going to start adding up, I know this spring and summer is going to be tight. 

My favorite way for you to help me would be for you to consider sponsoring me monthly on my Patreon. Not only will you help me out, but you’ll get updates and early access to hear and watch music that I’ve written!

You could donate directly to me, just make a note about what it’s for:  Venmo: @Kate-Kohler-1 or Paypal: Kate@katekohler.com 

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2023 Resolutions

Well here we are. I can’t say 2023 is off to a good start. Not long after coming back from visiting my family for the holidays I found myself in a tiny office at UCLA Medical with my boyfriend (Christian) and my surgeon, having a very intense conversation about which of my body parts she is going to remove.

They call Ovarian cancer “the silent killer” because in many cases it doesn’t present with any symptoms. You basically go in for a cough and you are already at stage 4, but luckily we caught it when we did and my young surgeon confidently continues showing us the CT scan imagery of my abdomen identifying the various regions that could be cancerous, but basically – we need to remove my entire omentum (the thin tissue that lines the abdomen), my ovaries, uterus, and some other areas. I could feel Christian’s now clammy hand squeezing mine tightly.

I’m reeling, but processing all the information to examine later, I keep replaying the first part of the conversation – That there is at least hope of a full remission, that there is a good chance that I could walk away from this thing and have a normal life again. And although it is going to take 3 months of chemo, followed by a major surgery and more chemo, at least there is a good chance.

Christian interrupts the intensity with “Hey, sorry, I think I’m going to pass out”. He was as white as a sheet. The surgeon called the nurse in to bring him back to vitality. Some fresh air, water, and smelling salts (who knew that was still a thing)… He recovered and we finished up and drove home.

So my New Year’s resolutions is to stay alive, to fight this thing as long and as hard as it takes, and to not loose hope. Health is everything, it is so easy to take for granted. Please, get yourselves checked out, especially if you are going through or about to go through menopause, be healthy, pay attention to your bodies, and encourage your loved ones to do the same.

Much Love,

Kate

If you’d like to support me through this cancer journey, please consider subscribing to my patreon.

Or donating directly through Venmo: Kate-Kohler-1 (Last 4-digits of my phone are 1668)

There are other ways to help me out, just ask…

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